Dara
New Member
I dont know which way is up anymore! As my husband said it best, its like you feel your sanity slipping away. We go to doctors and therapies and have been doing so since he was a year old and he is a perfect child there and does all he is asked to do but for us, he is a completely different child! I am not saying that his language is fantastic at speech or therapy but he speaks to them. 85% of our day is trying to communicate with him and he will just use his nonsense words. His therapist and head dr have seen the videos. We are all in agreement that it is 100% deliberate it is just how do we get him to stop it...no answers! How is he going to speak better if he doesnt speak! So he excels in speech and therapy so what! We dont see any of it at home. He does nothing at home. In fact my nose is bruised from him punching me for the upteenth time! His behavior is horrid at home. We talked to the therapists about it...no answers. In fact, nobody has any answers on how to deal with any of it. The good news is, that we are seeing a new neurologist on the 31st. This is neurologist number 4. This guy specializes in behavioral neurology and Developmental delays and autism so maybe he will be our match. The Mayo clinic is running so behind that the earliest we will get in is in July or August...