I just got off the phone with the neurology dept at the children's hospital in OKC. FINALLY, after a MONTH of calls and messages and one spectacularly idiotic young sounding girl who took the calls all last month, I got someone intelligent!!!
The very understanding lady is going to have the nurse practitioner call me this afternoon. To set up an evaluation when we are there this week.
If it is humanly possible they will get us in, according to this lady. It was a HUGE relief to speak to someone who didn't crack gum and say "yeah? So, what do you want?" 10 times in a phone call. The other lady was a temp apparently.
This is the first time I have felt some hope this week. Thank you for the prayers and good thoughts. They mean so much to all of us. I was crying after I hung up, it is just such a relief.
The pain doctor already had notes in the system for the neuros to please get us in sooner. Actually had changed the appointment yesterday - they were going to move it up a month to the end of Jan and call us this am to tell us the new date.
FINALLY my state seems to have a children's hospital that has a clue. We have another one, in Tulsa, but our luck there has not been stellar. Better than the local hospital, but that is praise so faint as to be almost invisible.
Keep the good juju coming, if you can. Please.
The very understanding lady is going to have the nurse practitioner call me this afternoon. To set up an evaluation when we are there this week.
If it is humanly possible they will get us in, according to this lady. It was a HUGE relief to speak to someone who didn't crack gum and say "yeah? So, what do you want?" 10 times in a phone call. The other lady was a temp apparently.
This is the first time I have felt some hope this week. Thank you for the prayers and good thoughts. They mean so much to all of us. I was crying after I hung up, it is just such a relief.
The pain doctor already had notes in the system for the neuros to please get us in sooner. Actually had changed the appointment yesterday - they were going to move it up a month to the end of Jan and call us this am to tell us the new date.
FINALLY my state seems to have a children's hospital that has a clue. We have another one, in Tulsa, but our luck there has not been stellar. Better than the local hospital, but that is praise so faint as to be almost invisible.
Keep the good juju coming, if you can. Please.