Please Pray For My Little Niece

Discussion in 'The Watercooler' started by Stella Johnson, Dec 19, 2008.

  1. Stella Johnson

    Stella Johnson Active Member

    My little sister is 27. She's having her first baby. Right after she found out she was pregnant they found a cystic hygroma which is basicly some type of tumor in the baby's brain that goes down their neck. (I posted about this previously when it happened)

    Miraculously it went away on it's own. It dumbfounded the docs. They had never seen it go away. The hygroma is usually a sign of major genetic defects. Deb had genetic testing done and all came back normal. We thought we were in the clear.

    She's now 27 wks pregnant. They did another sono today and more bad news. First they noticed the neck is too thick then the doctor looked at it and said there is fluid either on or in the lungs. Not sure which. They said it's a sign of Noonan's syndrome which is a very disfiguring genetic disorder that can cause retardation, serious deformaties, and heart problems.

    Her doctor sent her immediately to a perinatologist. They are doing more gentic tests.
    They can either try to drain the lungs in utero which may cause her to go into labor and they said that usually the lungs will just fill back up again, or they can go ahead and take the baby. She's so tiny. I'm scared she won't make it. The baby's name is Bailey by the way.

    When I was asleep today I heard my phone ringing but didn't feel like getting up to answer it. I had another nerve block for my hand/arm earlier. They gave me demoral and it knocked me flat. My mom called Andrew at work and told him so he rushed home to wake me up.
    The perinatologist she saw today wants her to see another perinatologist next week but they are all not working. Wonderful isn't it?

    From the way they talked something has to be done soon because the fluid on the baby's lungs is keeping them from developing. I feel so bad for her. Breaks my heart. We've been through so much with my difficult child's medical problems, I was really hoping we would get one healthy baby in the family. Deb is scared to death. I just want the baby to be healthy.
    They also want her to go to the hospital and meet the PICU docs so that she's more comfortable with them. The baby will live at the hospital for months if she's born so soon.
    The holidays aren't going to be very happy or merry for us this year.

    Please pray for my little niece and my sister. We really need it. [​IMG]

  2. gcvmom

    gcvmom Here we go again!

    Oh I am so sorry she is having to face this! I will pray for a miracle -- they happen every day in medicine. It's good they are getting her in to see specialists early so that everything possible can be done to help the baby.
  3. Big Bad Kitty

    Big Bad Kitty lolcat

    How heart wrenching. Adding in my prayers as well.
  4. Im a Believer

    Im a Believer New Member

    OMG ~ Praying now!
  5. donna723

    donna723 Well-Known Member

    Aw, Steph, I'm so sorry she's having so many problems. Adding my prayers to the rest.
  6. tiredmommy

    tiredmommy Site Moderator

    I'm keeping Bailey, Deb and your entire family in my prayers. {{{Hugs}}} for your aching heart.
  7. Wiped Out

    Wiped Out Well-Known Member Staff Member

    Adding in more prayers.
  8. Fran

    Fran Former desparate mom

    I'm so sorry for your sister and Bailey. The situation with this innocent child is so sad and it is an awful experience for your sister and her husband. I hope they can get through this and Bailey does better than expected.
  9. Hound dog

    Hound dog Nana's are Beautiful

    Prayers going up, sending mega good juju and good vibes.

    Such a scarey thing, and heartbreaking. Hopefully it will be something they can correct.

  10. KTMom91

    KTMom91 Well-Known Member

    I'm so sorry...prayers going up immediately.
  11. ML

    ML Guest

    I am praying for a Christmas miracle. I'm so sorry your sister and her husband are facing this. ML
  12. hearts and roses

    hearts and roses Mind Reader

    Aw, Steph, this is so tragic. Sending up prayers for your sister, Bailey and your whole family~hugs.
  13. everywoman

    everywoman Active Member

    Prayers being said that healing takes place.
  14. Stella Johnson

    Stella Johnson Active Member

    Thank you for all the prayers and well wishes. I'm hoping this will be our Christmas Miracle.:angel2: I've been making little beaded angels for tree ornaments. I decided to make some for pins for us to wear to remind us of Bailey. I'm giving them to all the grandparents involved for Christmas along with a bible bookmark with an angel on the top. Bailey needs all the angels she can get.

  15. Suz

    Suz (the future) MRS. GERE

    This is just terrible, Steph. Prayers for Bailey.