L
LynnG
Guest
A long time ago I was registered here and forgot sign in and password, so I reregistered. This is what happens when you store passwords in a computer and you destroy a hard drive, be that as it may hello everyone!
My question is are there parents here who have children who take Seroquel (or any atypical antipsychotic drugs) that resulted in them developing Tardive Dyskenesia?
If so, some input about steps taken to control this and how their quality of life is now that they developed this would be greatly appreciated.
Background info:
Son is in an Residential Treatment Facility (RTF) for Autism, ADD, ODD, Intermittent Explosive Disorder (IED) and is on Seroquel 600 mg, Lamictal 200 mg, Adderall XR 50 mg, Dextroamphetamine 10 mg.
5 weeks I brought to staffs attention to let the doctor know my son began having slight tremors. Center was aware of something starting, as the Therapist that we see weekly for family therapy commented on receiving a report son was wrote up for disruption in a session because he could not sit still.
Every week for four weeks son would come home on weekend passes and the tremors increased. After speaking to Nurses, staff no one appeared to forward the information to the Center's Medical Team (ie: The Doctor) by now my son had uncontrollable facial/lip moves, arm, finger, trunk and leg movements as well. It progressed from mild tremors to full blown out of control muscle movements through out his entire body and during this entire time doing every thing I possibly could to get the doctor to see him.
After the 5th week, I demanded to attend his treatment team meeting at which time the Doctor looked at son (at first his therapist without saying directly NO did all she could to discourage me in attending this).
Two days before this meeting a nurse there said she did a visual test and he did not have Tardive Dyskensia (a term I never heard before until four days ago). The minute my son walked in to the room the doctor looked at him and said that is exactly what he has.
The doctors response to why he wasn't seen? That staff are very protective of him and made the decision that my sons symptons did not warrant seeing the doctor and they screen things so he (Doctor) doesn't get overwhelmed. Needless to say I am furious to be told that after doing all in my power to have a doctor see him from the very start of noticeable tremors!
That being as it may, they are now beginning to wean him off this medication with hopes of at the best, decreasing the symptons of Tardive.
My question is are there parents here who have children who take Seroquel (or any atypical antipsychotic drugs) that resulted in them developing Tardive Dyskenesia?
If so, some input about steps taken to control this and how their quality of life is now that they developed this would be greatly appreciated.
Background info:
Son is in an Residential Treatment Facility (RTF) for Autism, ADD, ODD, Intermittent Explosive Disorder (IED) and is on Seroquel 600 mg, Lamictal 200 mg, Adderall XR 50 mg, Dextroamphetamine 10 mg.
5 weeks I brought to staffs attention to let the doctor know my son began having slight tremors. Center was aware of something starting, as the Therapist that we see weekly for family therapy commented on receiving a report son was wrote up for disruption in a session because he could not sit still.
Every week for four weeks son would come home on weekend passes and the tremors increased. After speaking to Nurses, staff no one appeared to forward the information to the Center's Medical Team (ie: The Doctor) by now my son had uncontrollable facial/lip moves, arm, finger, trunk and leg movements as well. It progressed from mild tremors to full blown out of control muscle movements through out his entire body and during this entire time doing every thing I possibly could to get the doctor to see him.
After the 5th week, I demanded to attend his treatment team meeting at which time the Doctor looked at son (at first his therapist without saying directly NO did all she could to discourage me in attending this).
Two days before this meeting a nurse there said she did a visual test and he did not have Tardive Dyskensia (a term I never heard before until four days ago). The minute my son walked in to the room the doctor looked at him and said that is exactly what he has.
The doctors response to why he wasn't seen? That staff are very protective of him and made the decision that my sons symptons did not warrant seeing the doctor and they screen things so he (Doctor) doesn't get overwhelmed. Needless to say I am furious to be told that after doing all in my power to have a doctor see him from the very start of noticeable tremors!
That being as it may, they are now beginning to wean him off this medication with hopes of at the best, decreasing the symptons of Tardive.